文献类型： 会议论文

第一作者： Sonali R. Mishra

作者： Sonali R. Mishra ¹ ; Eric B. Hekler ² ; Predrag Klasnja ³ ; Larsson Omberg ⁴ ; Lara Mangravite ⁴ ; John MacDuffie Woodburn ⁴ ; Michael Kellen ⁴ ;

作者机构： 1.University of Washington School of Information

2.University of California San Diego

3.University of Michigan

4.Sage Bionetworks

关键词： Symptom tracking;Personal informatics;Health informatics;Parkinson's disease;Coping with chronic disease;Quality of life

会议名称： ACM Conference on Human Factors in Computing Systems

主办单位：

页码： 1344-1359

摘要： Self-tracking can help people understand their medical condition and the factors that influence their symptoms. However, it is unclear how tracking technologies should be tailored to help people cope with the progression of a degenerative disease. To understand how smartphone apps and other tracking technologies can support people in coping with an incurable illness, we interviewed both people with Parkinson's Disease (n=17) and care partners (n=6) who help people with Parkinson's manage their lives. We describe how symptom trackers can help people identify and solve problems to improve their quality of life, the role symptom trackers can play in helping people combat their own tendencies towards avoidance and denial, and the complex role of care partners in defining and tracking ambiguous symptoms. Our findings yield insights that can guide the design of tracking technologies to help people with Parkinson's Disease accept and plan for their condition.

分类号： TP30-53